Tag Archives: #suckitlupus

© alexashersears suckitlupus 2012 world lupus dayToday is World Lupus Day. Five million people, and about 1.5 million Americans, are living with the automimmune illness.

And while the entire month of May is devoted to raising awareness, there’s a goal today:

On May 10, ask 10 people to donate 10 dollars to the Lupus Foundation of America (LFA):

Text LUPUS to 80888 + give $10 to support the LFA or donate by visiting their site, here.

Then please send this message to 10 more people.

This isn’t a chain letter. It won’t bring you bad luck if you don’t share it, or if you don’t give.

But if you can give, if you can give anything, please do and then email me alexandrawrote [at] gmail and I’ll send you a sticker. A sticker that tells lupus to #SUCKIT.

FACT: Lupus is an unpredictable and complex autoimmune disease that causes inflammation and can damage any organ in the body with life-threatening consequences.

FACT: There is no single laboratory test that can determine whether a person has lupus. Diagnosing lupus involves analyzing the results of several lab tests, a review of the person’s entire medical history, and the history of close family members.

FACT: Lupus can be an expensive disease. The average annual cost to provide healthcare for a person with lupus is $12,643, and rises to nearly $21,000 when lost work productivity is included. (via the LFA)

I last wrote about lupus six months ago saying this:

Working as a writer and photographer for BlogHer, I met Erin Kotecki Vest, known to many as the Queen of Spain. Erin is a wife, mother, award-winning journalist and BlogHer’s Social Media Strategist.
In the last year, lupus has turned her life upside down. UP. SIDE. DOWN.
In times of difficulty, some bake. Others knit or meditate. As a child of the Lisa Frank sticker-loving eighties, I designed stickers and sent them off to be printed.
#SUCKITLupus is Erin’s twitter hashtag of choice. Words have power. These ones certainly do. I think it’s brilliant. As does their family dog, Nicky, who I think would have made the stickers himself if he had opposable thumbs.
Help us fight lupus with a donation (whatever you can give) to the Lupus Foundation and I’ll send you a sticker. With a puppy on it. Who doesn’t want that?

I have more stickers at the ready. Email me and let me know you’ve made a donation to the LFA. Big or small, it doesn’t matter.

If you’re living with lupus, or know someone who is, email me and let me send you a sticker so that you can tell it to #SUCKIT, too.

And next Friday, May 18th, be sure to wear something in lilac, plum, lavender or aubergine. Be sure to POP – Put on Purple – for lupus awareness.

Like I said last November, let’s show Erin’s kids that a cyber village can, and will, come together in support of one another. Let’s make #SUCKITLupus a battle cry for Lupus and Autoimmune Disease Awareness.

Do it because sometimes we don’t have the resources – be it words or finances – to think we can make a difference.

WE ALL CAN MAKE A DIFFERENCE.

If you have a blog, feel free to cut and paste the button below and add it to your site. Who doesn’t love puppies or chevron patterns or stickers, right?

Alexandra Wrote
<div align="center"><a href="http://www.alexandrawrote.com" title="Alexandra Wrote"><img src="https://alexandrawrote.com/wp-content/uploads/2011/11/suckit-lupus-blog-button-300.jpg" alt="Alexandra Wrote" style="border:none;" /></a></div>

 

DISCLAIMER: This is a project created by Alex Asher Sears with the permission of Erin Kotecki Vest, who thought I was kidding when I said I was going to make stickers. The Lupus Foundation did not not approve or sanction this project, but all donations made go directly to their organization with the hope of fighting this disease and retiring the #SUCKITLupus hashtag very, very soon.

#SUCKIT Lupus – It Takes A Cyber Village

Let us not be content to wait and see what will happen,

but give us the determination to make the right things happen. – Horace Mann

I collect quotes finding inspiration in the words of others. But there are some bits of wisdom I don’t understand. “Everything happens for a reason” is one of them. Some things don’t make sense and never will. Sometimes there is no rhyme or reason.

Working as a writer and photographer for BlogHer, I met Erin Kotecki Vest, known to many as the Queen of Spain. Erin is a wife, mother, award-winning journalist and BlogHer’s Social Media Strategist.

In the last year, lupus has turned her life upside down. UP. SIDE. DOWN.

Sometimes there is no rhyme or reason.

I’m really lousy at seeing something I think is wrong and not being able to change it.  In the US, over one million people have lupus, and 16,000 new cases are diagnosed annually. And I am amazed at the strength of Erin, her husband, and children in facing this one day at a time. Never letting lupus win. Telling it to #SUCKIT even on the days it hurts most.

In times of difficulty, some bake. Others knit or meditate. As a child of the Lisa Frank sticker-loving eighties, I designed stickers and sent them off to be printed.

#SUCKITLupus is Erin’s twitter hashtag of choice. Words have power. These ones certainly do. I think it’s brilliant. As does their family dog, Nicky, who I think would have made the stickers himself if he had opposable thumbs.

Let’s make #SUCKITLupus a battle cry for Lupus and Autoimmune Disease Awareness. Let’s show Erin’s kids that a cyber village can, and will, come together in support of one another.

Help us fight lupus with a donation (whatever you can give) to the Lupus Foundation and I’ll send you a sticker. With a puppy on it. Who doesn’t want that?

DONATE HERE

First, click the link above to donate – all donations go directly to The Lupus Foundation.

Then, email me at alexandrawrote [at] gmail with your name and mailing address, and I’ll get your sticker to you.

And, in the great hashtag tradition, I’d love it if you’d tweet a pic of you and your #SUCKITLupus sticker to @alexandrawrote. 

One more thing, feel free to grab a button below for your site. Thanks to Lindsay for helping me code the buttons. #ittakesacybervillage xo a

DISCLAIMER: This is a project created by Alex Asher Sears with the permission of Erin Kotecki Vest, who thought I was kidding when I said I was going to make stickers. The Lupus Foundation did not not approve or sanction this project, but all donations made go directly to their organization with the hope of fighting this disease and retiring the #SUCKITLupus hashtag very, very soon.

Alexandra Wrote

<div align=”center”><a href=”http://www.alexandrawrote.com&#8221; title=”Alexandra Wrote”><img src=”https://alexandrawrote.files.wordpress.com/2011/11/suckit-lupus-blog-button-300.jpg&#8221; alt=”Alexandra Wrote” style=”border:none;” /></a></div>

Alexandra Wrote

<div align=”center”><a href=”http://www.alexandrawrote.com&#8221; title=”Alexandra Wrote”><img src=”https://alexandrawrote.files.wordpress.com/2011/11/suckit-lupus-blog-button-150.jpg&#8221; alt=”Alexandra Wrote” style=”border:none;” /></a></div>

(Nicky the Pup #SUCKITLupus stickers are 2×3.5 high gloss stickers designed by AlexandraWrote featuring the Sprik Space Collection. Please Link With Love if you’d like to share the images above.)